It’s been 6 months, give or take, since my last update on Tanner’s progress. For the most part, we have been at home, happy and mostly healthy! Learning to deal with all the “normal” kid things that happen when you have a baby, decifered with having a kid with a heart trandplant.
As many of you know from facebook, we have had 2 checkups with Tanner’s cardiologists since I have last posted an update. Two very different types of checkups, that’s for sure! Our appointment in September started with a trip to our local emergency room because we thought Tanner was coming down with a stomach virus. So there we were sitting in the ER, browsing facebook, Tanner was snoozing, and completely expecting to get some fluids and some help keeping his anti-rejection meds down when the doc walked in, quickly shut off the fluid that was running in his IV and delivered the worst case scenerio that any of us could think of. One of the markers in Tanner’s blood work that they use to measure heart function was elevated. And not just a little bit, enough to get everyone’s attention and even though there was a short stop over in Kansas City, Tanner’s transplant team wanted him in their care ASAP as they were fearing Tanner was rejecting his new heart. It earned him another Survival Flight, this time with a team from U of M on a private jet, a heart cath, and a biopsy to ensure that there was no rejection. Fortunately, once again we were shown that God has big plans for Tanner and the biopsy showed absolutely no rejection. Just another cool story to tell everyone when he gets older…
This visit was thankfully more routine in nature. We flew up here on Monday, had appointments all day yesterday and are flying home as I type (thankful for plane rides at nap time!) Definitely a busy couple of days, that’s for sure, but nothing as stressful as the last trip. Not that this visit didn’t have its own little bump in the road, Tanner’s blood work done in the morning didn’t look quite right to the team, so we had to repeat it in the afternoon. They then wouldn’t let us leave until it came back and everything was in the clear. We squeaked by, yet again, this time avoiding another hospital stay.
The cutest story of the day comes during our visit with the head of the transplant team. Everytime we come to Michigan, along with the routine tests, we meet with every part of the entire team, including child psychology, dietitians, nurse practitioners and doctors. Today by the time we talked to Dr. Schumacher, who is the head of the transplant team, Tanner had watched his dad shake the hand of quite a few people. Dr. Schumacher, or as we are lucky enough to commonly refer to him, Kurt, shakes TJ’s hand and heads across the room to do the same with me. But before he could reach me, Tanners little hand flew out from underneath his blanket in the direction of the doc with a gesture that could only be interpreted as “Hey you, shake mine too!” After shaking my hand, it became quite the game to Tanner who got about 10 hand shakes and an equal amount of high fives and lots of smiles from all involved.
Even though its been a while since my last update, we are continually grateful for all of you who pray for our son and our whole family! We are also so grateful for God’s unending grace and His abundant blessings in our lives. We are so very fortunate and thankful to be home, healthy and excited for another Christmas together. If I could still request something as I sign off here, please say a prayer for those families who aren’t able to be together this holiday, separated by both hospitalization and the one’s enduring the loss of their loved ones.
Merry Christmas and God Bless you all!
Big boy didn’t need any sedation for his echo!
C.S. Motts sure is pretty this time of year…